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IGF 2019 WS #419
Who owns us? Personal Data Rights Today and Tomorrow

    Subtheme

    Organizer 1: Lee McKnight, Syracuse University
    Organizer 2: Arsene Tungali, Rudi International
    Organizer 3: Minda Moreira, Internet Rights and Principles Coalition (IRPC)
    Organizer 4: Dr. Francis Kateh, Deputy Minister, Ministry of Health, Republic of Liberia
    Organizer 5: Renata Aquino Ribeiro,

    Speaker 1: Jane Coffin, Technical Community, Western European and Others Group (WEOG)
    Speaker 2: Dr. Francis Kateh, Government, African Group
    Speaker 3: Bruna Santos , Civil Society, Latin American and Caribbean Group (GRULAC)

    Moderator

    Arsene Tungali, Civil Society, African Group

    Online Moderator
    Rapporteur

    Marianne Franklin, Civil Society, Western European and Others Group (WEOG)

    Format

    Round Table - Circle - 90 Min

    Policy Question(s)

    This workshop will explore new approaches and treatment of
    trusted data, including the most sensitive data about our own person. Who
    owns us? How can blockchain, AI, and other new technologies, as well as law and ploicy changes, provide a more hopeful distributed model and satisfactory proposition for
    all of us? And especially, develop personal data rights that are protected by technology, law, and practice.

    SDGs

    GOAL 3: Good Health and Well-Being
    GOAL 4: Quality Education
    GOAL 5: Gender Equality
    GOAL 8: Decent Work and Economic Growth
    GOAL 9: Industry, Innovation and Infrastructure
    GOAL 10: Reduced Inequalities
    GOAL 16: Peace, Justice and Strong Institutions
    GOAL 17: Partnerships for the Goals

    Description: This workshop will explore new approaches and treatment of distributed,
    trusted data, including the most sensitive data about our own person. Who
    owns us? Can blockchain and other new technologies transform this worn
    debate into a more hopeful distributed model and satisfactory proposition for
    all of us? This workshop will consider a call to establish our 31st Right,
    extending from the 30 Rights enumerated in the Twentieth Century in the UN
    Declaration of Human Rights.

    With the GDPR now in force, firms and nations are reviewing their data
    policies to mitigate risk of incurring substantial penalties. Beyond loss
    avoidance, many people, insurers, and regulators are weary of repeated
    scandals as use and abuse of legitimately collected but inappropriately used
    or protected personal data remains rampant. Do we not have a 21st Century
    right to our own data?


    Expected Outcomes: We expect to share the results of the workshop with stakeholders including interested governments, firms, and civil society organizations worldwide.
    New law and policy practices for personal data will follow from this workshop.

    This workshop will explore new approaches and treatment of distributed,
    trusted data, including the most sensitive data about our own person. Who
    owns us? Can blockchain and other new technologies transform this worn
    debate into a more hopeful distributed model and satisfactory proposition for
    all of us? This workshop will consider a call to establish our 31st Right,
    extending from the 30 Rights enumerated in the Twentieth Century in the UN
    Declaration of Human Rights.

    With the GDPR now in force, firms and nations are reviewing their data
    policies to mitigate risk of incurring substantial penalties. Beyond loss
    avoidance, many people, insurers, and regulators are weary of repeated
    scandals as use and abuse of legitimately collected but inappropriately used
    or protected personal data remains rampant. Do we not have a 21st Century
    right to our own data?

    This workshop will consider a call to establish our 31st Right, extending
    from the 30 Rights enumerated in the Twentieth Century in the UN Declaration
    of Human Rights.

    This would build on prior work within the framework of the Charter on
    Internet Rights and Principles developed by the Dynamic Coalition on Internet
    Rights and Principles of the UN Internet Governance Forum, and other related
    perhaps more binding instruments

    This workshop is co-sponsored by:
    Internet Governance Caucus (IGC) &
    Dynamic Coalition on Internet Rights and Principles (DCIRP) &
    Hu-manity.co &
    Republic of Liberia

    VIII. Content of the Session:
    This workshop will explore new approaches and treatment of distributed,
    trusted data, including the most sensitive data about our own person. Who
    owns us? Can blockchain and other new technologies transform this worn
    debate into a more hopeful distributed model and satisfactory proposition for
    all of us? Do we not have a 21st Century right to our own data?

    In this era of digital transformation of nations and firms, should we not
    expect novel, and valuable, expansion of human rights? If yes, what are some
    of the other new or updated instruments, and innovative mechanisms which may
    be desirable? Can blockchain and distributed ledger technology help us
    collaboratively reach WSIS objectives and UN sustainable development goals?
    Our human data is being bought and sold in a human data marketplace that is
    not being respected as our property, Hu-manity.co notes.

    This workshop through blockchain actually cuts across all IGF 2018 Themes:
    Emerging Technologies, Human Rights, Innovation & Economic Issues, Trust &
    Privacy, Development, Cybersecurity, Digital Inclusion and Accessibility,
    Technical & Operational Topics, Gender & Youth, Evolution of Internet
    Governance.

    Workshop Format: Panelists considering collaborative governance case study
    of new (proposed 31st) Human Right; followed by Roundtable debating and
    refining Recommendations for sustainable, extendable approaches to address UN
    SDGs. Followed by Respondents Open Mic. Followed by Rapporteurs. Followed by
    Open Mic Last Call

    This Workshop Session is organized as follows:
    • Call to Order and introduction of the Session: Session Co-Moderators: 3
    minutes {1.5 minutes each]
    • Panel: 24 Minutes; 4 minutes X 6 speakers (not all confirmed; could be
    5, or 4)
    • Roundtable: Real-Time Recommendation; or Not: 18 minutes; 3 minutes X 6
    speakers (not all confirmed, could be 3 or 4)
    • Respondents Open Mic: 30 minutes: this is intended to engage everyone,
    whether in the room or remote
    • Rapporteurs: 5 minutes: Recommendation Synthesis: The rapporteurs will
    collaborate and attempt to indicate text that based on workshop discussions,
    could lead event to come to one, or two Workshop conclusions. OK, maybe 3.
    They will also be responsible for the submission of the Report.
    • FINAL CALL: All workshop participants Open Mic: 10 minutes to Endorse,
    Object, or Amend the suggested recommendations
    o Youth participants will be invited to start each of the Open Mic sessions
    o The Open Mic respondent session segments focus on refining the one, two, or
    three draft recommendations suggested by the roundtable. These can be further
    debated in varied social media following the workshop, and shared with
    relevant BPFs, DCs and CNB.
    o Geographically and Otherwise Varied Remote Moderators will use chat to keep
    remote participants aware of the discussion and report on any comments and
    questions during the Open Mic sessions.

    IX. Interventions:
    This 90 minute workshop will be structured to give many more voices an
    opportunity to be included in the dialog, by combining a 24 Minute Panel to
    discuss aspects of the topic, a Roundtable which will debate those views and
    whether new Recommendations could be developed, a 25 minute "Open Mic'
    Respondents session where remote and in-the-room workshop participants
    indicate whether they agree or would like to amend the -hypothetical still -
    recommendations, into a few possible Recommendations for further
    consideration. Finally, the Rapporteurs will attempt to further synthesize
    down and review wording into 2, or 3, workshop recommendations. In the final
    7 minutes of the session, to both sustain interest and engagement in the
    room and online, the workshop will close again in 'Open Mic' fashion with
    youth representatives, and those with accessability concerns, prioritized for
    critique, or confirmation, of the by then proposed recommendations.

    An illustrative example of this attempt at a high-engagement event, which we
    recognize does not follow exactly the usual 'panel' 'roundtable' or other IGF
    formats. But with a diverse mix of new and veteran IGF participants from many
    parts of the world including several developing countries, we anticipate an
    enriching, memorable, and impactful event.

    A draft, overfull agenda is below with both confirmed people willing to
    participate if the MAG process affords them that opportunity, as well as
    prospective participants whose availability and interest is not yet
    confirmed. But for whom we anticipate a positive response if their
    intervention would be welcomed.

    Each of the named participants below have their own views and experience
    which would be appropriate, and of interest, to share in this workshop.

    (Invited; confirmed where *)

    Workshop Co-Moderators: Minda Moreira, DCIRP * & Arsene Tungali, IGC * [Civil
    Society]

    Distributed Rights Panelists:
    Dr. Wilhelmina Jallah, Minister of Health, Republic of Liberia [Government];
    & Richie Etwaru, Founder & CEO, Hu-manity.co* [Business]; Phil Murphy,
    Governor, New Jersey [Government]; Jane Coffin, VP, Internet Society (ISOC)*
    [technical community] Vala Afshar, Salesforce Chief Digital Evangelist
    [Business] Bruna Martins dos Santos, Coding Rights, Brazil* [NGO];

    Roundtable: Crafting An IGF Recommendation on #My31 in Real Time; or Not
    Katitza Rodriguez, EFF [Civil Society]
    Akinremi Peter Taiwo, Compsoftnet, Nigeria* [Business]
    Eddan Katz, Protocol Design Networks, World Economic Forum [NGO]
    Judith Hellerstein, Hellerstein & Associates* [Business]
    Karine Perset, Sam Paltridge, or Andrew Wyckoff, OECD [NGO]
    Michael dePalma, Hu-manity.co* [Business]

    Respondents Open Mic [All workshop participants]

    Rapporteurs: Hanane Boujemi, DCIRP* [Civil Society]
    Kevin Risser, USAC & DCIRP [Civil Society & Government]
    Marianne Franklin, Goldsmiths* [Civil Society]
    Lee McKnight, SU * [Civil Society & Technical Community]
    X. Diversity:
    Diverse organizers have reviewed collaboratively a diverse set of prospective
    speakers and participants. Business, government, civil society and technical
    community participants are confirmed, from Africa, Latin America, Europe, the
    Middle East, and North America.

    Many of the speakers and moderators are from developing countries, and
    several are first-time IGF participants.
    XI.Onsite Moderator: Arsene Tungali (IGC) and Minda Meriem (DCIRP)

    Renata Aquino, who has many years of experience assisting and increasing
    remote participation for IGF workshops, will play that lead role for this
    workshop as well. Co-organized Lee McKnight has run a Remote Hub at Syracuse
    University for several years and appreciates the challenges for online
    participants, and the organizers of their participation, both online and in
    the room where the Workshop is taking place.

    Renata is co-author of best practice recommendations for IGF remote
    participation, and we intend to aim to maintain her high standard for
    inclusion and operational efficiency.

    We are ensuring youth and persons with disabilities have several
    opportunities to engage as a Respondent in person or remote.

    Online participants will interact with regional remote moderators who will
    be led by Renata, who will coordinate both with online participants to ensure
    the queue prioritizes them, and with the in-room moderators, via chat.

    We expect the participants to be respectful of everyone's time and ensure all
    who wish to, whether on the workshop agenda or in the room, have an
    opportunity to contribute verbally as well as through other mechanisms.

    Relevance to Theme: Data governance models have been too limited and too restrictive on how we all would wish our data to be treated. A more explicit, permsissions based model for self-soverign data governance would permit individuals to participate in and profit from their own data - if they chose to do so, and data markets and technologies existed to enable transactions to occur. Enter the blockchain, to make it cheap, easy and fast for our data governance preferences to be clearly stated, and potentially, legally enforced.

    Relevance to Internet Governance: The work builds on prior work on prior Internet governance work on shared principles, norms, rules, decision-making procedures. Specifically, we would build on prior work within the framework of the Charter on Internet Rights and Principles developed by the Dynamic Coalition on Internet
    Rights and Principles of the UN Internet Governance Forum, and other related
    instruments

    Online Participation

    We will monitor questions and pause to bring remote participants concerns into the conversation.

    Proposed Additional Tools: We plan to be streaming the session to Internet Backpacks in remote communities beyond the reach of the current Internet infrastructure, in Democratic Republic of Congo, Kenya, Liberia, Costa Rica, India and Pakistan. Reaching people who will benefit from having their data rights and ownership protected from their initial forays onto the Internet in a way the rest of us were not afforded.